Monday, March 11, 2013

Courageous Kids

Recently, I changed the name of our junior youth group at church.  3rd - 5th graders met once per month for lessons and games and was called FW Friends.  It stood for Faith Weaver Friends.  FW Friends was the curriculum that was used for that group when started about 15 years ago, but with new kids and new leaders, they hadn't used that material for several years.  So, this year, I decided to switch things up a bit.  We now meet the 1st and 3rd Wednesday of the month and will go on one "outing" per year - not once a month.  The kids really seem to love the change, breaking into small groups and having 3- 4 rotations. It works well.  I also changed the name to Courageous Kids which seems more fun and appropriate

I have to be honest in saying, I have been feeling sad lately about what is going on with my mom.  I have been convicted about earlier posts that I had written myself on this blog.  I do know that it is going to be ok, whatever that means for my mom, and I do know that God is in control of the situation.  I am not fearful, it just really sucks right now.  Yes, that is what I said.  Yes, it is a word that I do not allow my kids to say, it is such a strong, harsh kind of vulgar word, but really does apply. 

Mom is still in the hospital and is to have no visitors since her WBC is still very low.  Saturday night she fell, and got 2 staples in her head.  Yesterday I went to Indiana for the day.  Dad had spent the night at the hospital.  She wants to get out of bed, but she is too weak to walk, so someone needs to be there with her to make sure she is safe.  Aunt Marilyn arrived from Illinois late afternoon.  Early evening when we had woken her up to eat dinner, we noticed she was warm to the touch.  Yes, she had a fever.  Not cool!  She started with diarrhea a bit later and it lasted all through the night.  She had been given a Nupogen (sp?) shot to elevate the WBC count and was given 2 units of blood through the night to help the platelets & WBC to rebuild.  Being careful to not give too many specific details, going to the bathroom, clean up, and then the ointments for the burns and blisters (from radiation) makes for a VERY long and painful night for her, the caretakers and nursing staff.  It is just plain awful to watch.  I can't imagine going through it.

The chemo's side effects and the Morphine make her really confused.  It is interesting how the mind works, though.  All her main life circumstances seem to be jumbled up in her and come out in crazy, mixed-up short comments.  Babies, wedding, grand kids, puppies, medicines, nursing, cooking, friends, entertaining and properly placed bedding makes for an interesting hospital stay.  It is kind of a game trying to put it all together!

As of this morning, Monday, March 11th, her WBC is only .4.  It need to be above 3.  She will now get the Nupogen daily.  They did a stool sample and it was negative for Cdiff.  They will grow that culture for a few days.  (Glad I don't have that job!)  She will get a CT scan of her abdomen because she has been complaining of feeling "full" when she really doesn't eat much at all.  She has no fever today.  Her oncologist will come back this afternoon to check on her. 

Dad went home through the night to sleep and Aunt Marilyn stayed at the hospital.  Jeannie relived Aunt Marilyn later this morning, so she could go back to mom and dad's house to get some rest.

This morning I wasn't feeling too "encouraged."  Having a few short nights, probably hasn't helped, but that is just how that goes sometimes.  One reason I like to listen to the radio station KLOVE is because they call themselves "Positive and Encouraging."  Today I decided to look up on their website their "Encouraging Word."  http://www.klove.com/ministry/encouraging-word/

Today's Bible Verse:
This is my command-be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.
Joshua 1:9 NLT
 
I do sit down and read my bible.  Not daily, which I know I need to do, but I do read it.  For my job at church, of course, I use scripture for my lesson plans and how I develop and create my ministry.  I did not go to seminary, and I am not a good memorizer, so I have to be very careful!  I try to be sure I look things up carefully before I start to quote!  One of my favorite tools to use is a website BibleGateway.com.  I can search for a phrase or story and it will look it up for me exactly and if it isn't just the way I remember, I can search through different translations until I find just what I am looking for.  It makes my job a lot easier!  Just like my mom, I have a lot of life experiences and things in my head, so I have to work hard to "channel" the right thing at the right time when I am trying to quote (not a strength of mine...).
 
"...Be strong and courageous!  Do not be afraid or discouraged!"  After spending the day and evening with my mom an seeing all she is going through, I REALLY needed to hear THOSE words today.  Yes, it was Positive and Encouraging to me today.  I thought about those words and looked a little more at that webpage.  A little lower on the page was "Previous Verses." 
 
“A time to love and a time to hate. A time for war and a time for peace.”
Ecclesiastes 3:8

(Now I feel like my mom - with phrases, songs and movies of the past rolling around in my tiny little brain!)  This is one of those verses that you hear used for lots of different reasons and situations, and of course I quickly start to quote what I think is scripture, or maybe it is from the movie Footloose, or that song from the Byrds, "Turn, Turn, Turn."   (Better double check on this one!)

No, I can not get the italic print to turn off on here...grr...sorry. 

Never-the-less, mom is a child of God!  HE is with HER!  He is with me.  He wants, demand, me to be strong and courageous (check out the punctuation at the end of that scripture).  !   He does not want me to be afraid or discouraged.  He reminds me that this is all in HIS time - all of it - the good and the bad...(singing along, "turn, turn, turn...") He reminds me that he is with me.  He wants me to be a Courageous Kid. 
   
 

Saturday, March 9, 2013

Staples

Tonight, in the hospital, mom fell.  Dad had stepped out to get some dinner and was only gone 20 minutes.  Jeannie just happened to stop by to find mom laying on the floor.  She hit her head.  The CT scan and shoulder xrays came back clear.  They gave her staples.  Dad is going to stay the night with her.  I will go in the morning.  I was going to go to church with him in the morning - not sure if I will just go straight to the hospital now.  I'm sure my dad feels awful. 

Thanks again for your prayers. 

In the Hospital

Last night, mom was admitted to the hospital.  Her WBC is VERY low, .08.  She also has a UTI.  Any infection right now is very serious.  She is getting IV antibiotics.  They are doing their best to aid in her sores and blisters.  Painful seems like too light of a word to describe things right now for her.  The level of care that my dad has had to help with for my mom  certainly falls into the worse part of "for better or for worse."  The combination of morphine and pain that she is experiencing makes her again confused and now angry. 

She of again is allowed no visitors. 

Please pray that:
 ~ Total healing continues
~ Mom's pain is eased
~ WBC & platelets are quickly raised
~ Infections are healed
~ She is able to rest in the hospital
~ It would be awesome if she doesn't remember this phase
~ Strength & Rest for Dad

Thank you again for all your love and support. 

https://www.youtube.com/watch?v=N-KM_zpwfr4

Lord, I come, I confess
Bowing here I find my rest
Without You I fall apart
You're the One that guides my heart

Lord, I need You, oh, I need You
Every hour I need You
My one defense, my righteousness
Oh God, how I need You

Where sin runs deep Your grace is more
Where grace is found is where You are
And where You are, Lord, I am free
Holiness is Christ in me

Teach my song to rise to You
When temptation comes my way
And when I cannot stand I'll fall on You
Jesus, you're my hope and stay

Thursday, March 7, 2013

Last Radiation

"Today was the last radiation treatment.  Chemo ended last Friday.  Now is the waiting time so that all tissues can heal and get back to normal .  Gingie is suffering radiation burns.  She takes break through medication for pain.  We continue to value your prayer support for this healing time and that when we get to the place of treatment evaluation we will have excellent positive results.  God's presence is real.  He is our All in All.  Praise to Him from whom ALL blessings flow.

Rodney"

Tuesday, March 5, 2013

Roller Coaster

Well, as good as yesterday was, Mom had a very painful morning. 

Thank you again for being on this ride of a life with us.

A GREAT Day

Sunday I went to visit mom after I was done with church.  It was nice.  I stopped first at Giant Eagle to buy the things needed to make us grilled Rubens.  I know those are one of her favorites!  Then I went over to the Meadows to get her some frozen custard, again, one of her very special favorites!  We are all happy that it is now open. 

Uncle Dick was there for the morning and it was so nice to see him.  Later in the afternoon another friend stopped by to visit.  I left around 7:30 and I guess with a day full of visitors she was exhausted.  SHE SLEPT ALL NIGHT!!  WOW!!!!  She and dad BOTH really needed that rest.  Thank you Jesus! 

Yesterday after radiation, she had made an appointment for a manicure.  Jeannie was able to take her.  After her appointment she asked Jeannie if she had any other errands that needed to be done.  Jeannie told her she needed to go to Bon Ton to get a few things.  Mom thought well enough to go along.  She did not use the wheel chair as sitting is still very painful now due to the blisters from radiation.  I guess the shopping went just fine and when they were done mom told her that a hamburger and french fries sounded good from Eat n Park!  So, they went and got take-out.  Mom did eat 1/2 the burger and some fries!!!!  What an amazing day and HUGE milestone.  Mom said it felt so good to do something normal!  It made me really happy. 

This is the last week of radiation!  She is still feeling the side effect of chemo last week and I am sure the radiation side effects will stay for a while too.  After next week, she will then need to wait about 6 wks for testing to see how the treatments have worked. 

Please pray that her body continues to heal completely and that no other treatments are necessary.  It is amazing how friends and family have come together during this time of Mom's journey.  Although I hate how my mom has had to suffer, I am amazed as to the love and support we have. 

Philippians 1:6
And I am sure of this, that he who began a good work in you will bring it to completion at the day of Jesus Christ.

Saturday, March 2, 2013

A Note from Dad

"The second chemo is finished.  Chemo is tough.  Gingie started the week with the most energy she has had in weeks. As the week progressed the chemo sapped her strength and by Friday she was not a lucid she has been, but it is done.  We are confident that it has completed its job and even though the experience is rough, the end result of the cancer being destroyed is the desired result.
Radiation continues next week until the 7th, then it is finished.  Gingie is suffering radiation burning.  I am praying that the pain stops.  We anticipate good results here too.  The doctors and the two oncology centers have been excellent, we are receiving exceptional care. 
Faith is now the watch word.  The confidence that God is in control of all of this is very real in our home.  Yesterday we had a visit and a phone call that once again proves to us that God is using this experience for His Glory.  There is purpose in Gingie's Journey.  We could not have anticipated this and wonder just what He has in store as future days unfold.  I am reading "Don't Waste Your Cancer" by John Piper.  You can read it on line @ http://www.desiringgod.org/resource-library/books/dont-waste-your-cancer if you so choose.  It's a good read.
I wish that all of you could experience God at work in your life as we do here, but of course without the cancer.  We are trusting Him completely "And we know that in all things God works for the good of those who love him, who have been called according to his purpose" Rom 8:28.
Rodney"